Some thoughts

"More than 100 heartbeats per minute and you die"(Photo courtesy of the University of New South Wales, Sydney, Australia)

                                         

A very specific type of childhood disease (written in small letters for good reasons), grouped under the umbrella term "chILD", is a very rare lung condition (<25 cases world-widethat affects mainly children under 10 years.

eens 

Medical doctors seem to have just begun to understand this condition over the last few years, and there’s a lot yet to understand about a highly specific variant of this terrible condition which will be described further within these lines.


It is the case of children with a maximum heart frequency of ~100 and a high resting heart rate of ~80, meaning that any increase of heart rate brings them to a near-death situation at anytime, meaning that 24h medical attention and (especially respiratory) aid is not only indispensable, but vital, to avoid life-threatening situations. Most of these young children have a life expectancy of 10-12 years.


It is unimaginably difficult to keep the heart rate of a chILD low. A move, a sudden change in mood, a concern or maybe a discussion can mean death. Imagine how terribly this disease limits these little sunshines, who (would) love to play, practice ball games or other sports. This is not possible for the weakest of these little persons, but they can enjoy a ride (without pedaling) on a triathlon bike I carry with me into the hospital(s) if they leave me (!), which is usually the case. Their sparkling eyes do really mean a lot, not only to me, but to their families, their closest friends and the whole medical personel that takes care of them. I so much wished they could just play, practice ball games or other sports. It has become unavoidable to leave from their "home" without a huge congestion in my own heart, feeling weak myself, helpless, but always keeping motivating thoughts for the next visit so as to make them smile and laugh despite their unbelievably unfortunate destiny. 


Please, if you wish to support these young and bright minds, please feel free to contact me at anytime and we could envision together, what may be possible and how we could embrace your idea(s).


To have you right here reading these lines is already very nice, as you now know a little bit more about a truly particular and very rare children’s disease that should not be downplayed and given more attention. Please feel free to get informed yourself through other sources more in detail about it’s implications, although I can already anticipate that there is not much of information to be found, as the scientific community is still in early stages of research and potential developments to mitigate or counter the causes of the disease are yet to be uncovered.


Dominik Kozanda
Copyright © 2021. All rights reserved.

The information contained in this text (including any attachments, images...) is confidential, privileged and entrusted for the sole use of the reader. Any unauthorized review, use, copying, disclosure, distribution as well as taking advantage of any action based on the contents is strictly forbidden. Undertaking such an action may constitute an offense.


More thoughts

Doped -right now- and not aware of it? Perfectly possible

                                                                             Courtesy of DW Science

 -doping- (not written in capital letters for a number of reasons) is the word used in sport when athletes use prohibited substances or methods to unfairly improve their sporting performance.


Some motivations to dope may be the following, and some side effects can be examined on the illustration (ourtesy of the National Anti-Doping Agency (NADA), USA): 


-insane perfectionism

-achievement of athletic success by improved performance

-drive to win

-performance enhancing; not for a win, but for a better result (often seen in amateurs and hobby athletes as well)

-boosting public image; be it world-wide or within a family

-prize money

-the idea that other athletes use them


Although these motivations are well known, there are still many other "reasons" for falling into the (surely to some extent as well psychological) trap and, worse, even, there is a way of consuming performance enhancing drugs involuntarily, without being aware of it. This could have drastic consequences for an athletes' body and career. It would be the case of having an intake of a product, supplement or medicament with undeclared components which may be on a doping list, as not everything has to be declared by law. As an example could serve the many conservatives milk has in it, that do not have to be declared (although these are surely not performance enhancing). Same occurs with medicaments and supplements.


Although sometimes it may be regarded as boring, it is still highly relevant to read the leaflets!


We are all role models for the young and elderly. 

It does not matter how ambitious, professional or elite you consider yourself: giving a good example in public and in private of -not cheating- can have an astonishing impact and this is of a much greater value than (decorated) prestige or success.


Say NO to doping.

Dominik Kozanda
Copyright © 2021. All rights reserved.

The information contained in this text (including any attachments, images...) is confidential, privileged and entrusted for the sole use of the reader. Any unauthorized review, use, copying, disclosure, distribution as well as taking advantage of any action based on the contents is strictly forbidden. Undertaking such an action may constitute an offense.